I have been advised not to run any more marathons or half-marathons, but that I can still compete at up to 10km races. This almost seems like an off the shelf answer and Id therefore be really keen to find out your thoughts? No operation to replace/repair the aortic valve and yo replace the ascending aorta is minimally invasive. Thats just a marketing gimmick. I have been doing as much research as possible on what are the advantages/disadvantages of each replacement. Aortic replacement. I had an echo because of a scuba diving accident and was discovered to have a BAV (no PFO). My last CT scan in November showed a change from 4.3 (May) to 4.5 (November) however I was only given these results yesterday. There are several variations of this procedure that are applicable in specific situations. A different set of. My questions are Im wondering if you can advise me. I have also spoken with Boston Childrens Hospital who have been very helpful and enlightening. September 13, 2017 1:00 PM. Is that far fetched? These techniques are most applicable to situations in which there is regurgitation, rather than stenosis, of the valve and when there is also enlargement of the aorta. 2; Thank you for what you do and for your responsiveness. Thank you to every doc and nurse on my team!". The cardiologist doesnt do the surgery we have to go to another province to have surgery. The American College of Cardiology (ACC) in conjunction with the American Heart Association (AHA) has issued guidelines for the evaluation, monitoring, and treatment of individuals with BAV: In my opinion, these are useful guidelines for athletes and non-athletes, alike. 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I ran competively for a division 1 NCAA university through college and have maintained a high level of physical fitness since. I cant lift over 40lbs and I cant continue my work as a tradesman as it requires lifting over the 40lb mark. Your sons doctors are undoubtedly experts at pediatric patients. Dr. Larry, very helpful content. Substitute valves. Biscuspid Aortic Valve with trivial AR Athletes will ask when they can return to their sports. There are a lot of variables here, even from the short story youve shared. At the age of 12, she had a procedure to widen her valve as her heart condition continued to have an impact. Weight-lifting is only one example, but others would include golf, bowling, shooting, etc. "Were saying to put the focus back on you and make a date with your heart.". Willie Moses These differences of opinion may be legitimate. It is believed that Schwarzenegger had a bicuspid aortic valve which led to a Ross Procedure operation performed in 1997. These leaflets open and close to regulate blood flow from the heart into the aorta, and prevent blood from flowing back into the heart. So I saw an incredible surgeon and we are going for the Ross Procedure in Feb. Now that we know the type of surgery does this improve my chances or one day returning the CrossFit addicted life I miss? Diagnosed at 5 with BAV, checked yearly, and okayed to play soccer. Notify me of follow-up comments by email. One young man's complications from a bicuspid aortic valve were life-threatening, but perseverance and expert care helped him make it through. The Ross procedure borrows your sons pulmonary valve and uses it to replace his aortic valve and aorta. Thank you so much. Without careful study, I dont know what the true risks will be. The aortic valve prevents blood from flowing back into the left ventricle of the heart. Eventually I will need valve replacement. Sometimes it comes even when not exercising. Data from these studies supported the U.S. Food and Drug Administration's approval of TAVR for low-risk individuals - replacing a narrowed aortic valve through a small incision in a procedure . Is this the case? Do you recommend any particular diet, exercise, vitamins,etc.? PS: I noticed that the option Notify me of follow-up comments by email doesnt seem to work. During the Ross Procedure, the aortic valve is removed. Finally some solid information about exercise and life post AVR, thank you very much for that. Although bicuspid . My AVG HR on a daily basis is between 61-64 (that includes a workout where it exceeds 150 at times), I have no intentions of racing this marathon, simply crossing the FINISH line, and my heart rate will not exceed 150 I will walk when/if necessary. I say this based on the fact different exercises will allow for differrent weight tolerances than others, in addition, stronger people can handle more weight than others. Like you mention, one theory is related to the aortic blood flow. Oh, plenty. I would like to thank you very much for providing me with your thoughts. Very often, the specialists office will make note of the patients problem and make appropriate decisions about whether routine or urgent appointment scheduling is needed. Hi Dr Creswell, My son was diagnosed with BAV, by chance, when he was 7. My name became public 25 years ago this week. Finding this site is such a relief / source of hope for me thanks so much Dr. Larry!. Bicuspid aortic value ppg 24 mmhg I take bisoprolol (low dose) and my pressure is currently normal . My Dr is almost certain that these symptoms are caused by issues that are not cardiac related, and that with at the stage my BAVD is at, it would not produce symptoms. No changes in regurgitation status (aortic regurgitation LVOT 19%); Seven months ago I had emergency AVR due to a BAV that was severely compromised by endocarditis. EKG and echocardiogram were done showing BAVD. I dont know about the relative effectiveness of various ARBs used for this purpose. We go back in 3 months for another echo. My cardiologist gave me green light for everything except strenuous exercise (used to train for ironman and similar challenges). My questions are: will need careful consideration by your physicians who know all of the pertinent details. His BAV is causing very little back flow. Or is the real risk related to further deterioration of the heart in the longer term that would be picked up by 6 monthly monitoring, which may indicate the need for surgery but not an immediate risk of dying suddenly? However, many people will develop complications from their BAV and may need surgery in their lifetimeeither to repair or replace the aortic valve, the thoracic aorta or both. Those with symptoms are usually identified (BECAUSE of those symptoms) in the first year or two of life. Went through the process of antibiotic therapy and. If a large enough valve is implanted, there may be no noticeable impact on the ability of the heart to do extra work that comes with running (or any exercise). I used to do quite some running 10 years ago (still at amateur level), I was doing lots of 10k and 20k and even I managed a marathon in 3h:26min (but at that time I didnt know about the BAV). He had a mild BAV and was told that he can play with no restriction. Barb. BAV is the most common cause of heart disease present at birth and affects approximately 1.3% of adults. Theres no reason to not be CPR certified.. Susp. Still no stenosis or regurgitation, aorta now 35 mm, he is 6 ft, 150 pounds. In my early 40s I thought that I was getting out of breath more than I should and eventually began to feel weak or nervous during a game, but only on Sunday. I wouldnt hesitate to register your concern with your sons doctor about waiting a few weeks. This was during a 12 week intense training block where my resting heart rate got as low as 42 bpm. We are trying to work out a way for her to continue to play. I had a Type A aortic dissection of the ascending aorta that extended into the descending aorta terminating near the femoral arteries. Thats the reason we try to place the largest possible substitute valve in patients who need replacement. No stenosis or regurgitation, aorta 27 mm at the time. Get your act together, Columbus! I eat relatively well, but sometimes having those pizzas and burgers late at night I had to change that.. I had a ventricle septum defect patched up shortly after birth with no further follow up and a full recovery. Aortic valve repair is sometimes possible. Rhm, 43, tragically lost two of her family members to heart issues. Weve known the risks and my daughter has done well to avoid scrapping for the ball etc. Arnold Schwarzenegger was born with a bicuspid aortic valve, in which the aortic valve has only two leaflets, instead of the typical three. I see in this blog that Dr. C noted: Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. I will keep you posted. Although we still dont have very long term results tracked (15+ years), in the short term the results seem to be much superior to regular bentall de bono option (and its variations). Index to blog posts and online articles, Filed Under: Heart problems Tagged With: aorta, aortic aneurysm, arotic valve, bicuspid aortic valve, congenital heart disease, heart, heart surgery. Or its the result of the cumulative effect of the aortic and mitral valve leakage? I wonder if there is also a psychological factor involved. Semilunar valves: The pulmonary valve and aortic valve. Doctors at the Frankel Cardiovascular Center's Comprehensive Aortic Program have . My problem is a perpetual fear and worry about having this diagnosis and having to someday undergo open heart surgery. To the extent that any operation fixes the stenosis or regurgitation, we might expect better efficiency from the heart. I do think that aspects of the martial arts are strength-related. I dont think theres a way to predict the future in this circumstance. Routine endocarditis prophylaxis is . I met an old guy once after a run and he described me very well his running experience; he said when I accelerate, Im the only one to know. Aortic stenosis, the narrowing of the aortic valve. What he did say is there are no signs of stenosis, and my heart looks very strong. The pertinent questions for your cardiologist is whether there is any stenosis (narrowing) or regurgitation (leakage) of the aortic valve and whether the size (diameter) of the nearby aorta is normal. Any advice would be greatly appreciated. For those with moderate aortic stenosis, the guidelines suggest restricting activities. I took it up 7 years ago. The bicuspid aortic valve opens and closes abnormally, and can result in leaking of the valve. He is very athletic. Im afraid Ill end up like my Mom. We live at 6,500 ft (elevation) so Im not sure if its affecting my blood pressure when doing normal things. Benefits: no blood thinning (with attendant risks) needed. Ive a BAV with the fusion being between my right coronary and non-coronary leaflets. Im less certain about how BAV, coarctation, and history of VSD repair might impact ones current top-end performance. I suspect (and hope) you will say that the latest recommendations say no restrictions for someone like me but I havent seen yoga specifically mentioned. Hector V. Ive never heard about a mechanical aortic valve becoming loose because of high HR. I was diagnosed with BAV, with regurgitation, no stenosis, at age 63. Bicuspid valves are quite common (1-2 percent of the population). Its always good that investigators are looking for new solutions to old problems. My son is 15 and has grown about 4-6 inches in the last year. It makes the heart work harder than it should. 100 Black-Owned . Before that, I had never seen a cardiologist ever. Currently, it is estimated that about 5% of those with bicuspid aortic valve disease will experience aortic dissection. To help correct the regurgitation, the cusps of the patients valve leaflets can be tailored, with the valve leaflets left in place. The numbness/tingling has me constantly worriedand the slight chest pains have me always thinking is that my BV or Aorta causing issues?. And he never had any symptoms and played competitive soccer since he was 6. Males are affected 3:1 compared to females. My son will seek a repair when his conditions deteriorate. Should I be doing push-ups/pull-ups? Although bicuspid aortic valves can occur . (I am on a low dose beta blocker) Finally, athletes are not spared. Frankly Im worrying quite a bit about thisand I feel like its causing additional chest pain and shoulder pain. Guidelines suggest that athletes with BAV, normal size aorta, and no more than mild aortic regurgitation or stenosis can participate in all sports, without restriction.provided that they do not have an inherited connective tissue disorder like Marfan's's syndrome. They dont know they have it [It] leaks blood. So it is very possible to continue athletic activities after surgery. Only restrictions are no weights greater than 100 pounds or heavy contact sports. ", Braxton is a survivor of pericarditis, an inflammation of the sac surrounding the heart. After the scans, ultrasounds, stress tests and TOE, I was diagnosed with BAV with no Stenosis, no Aortopathy and no evidence of Coarct and normal LV size and function. Randyyour situation has many similarities to mine; I would be very interested in sharing experiences. I have severe aortic stenosis with no signs or symptoms. Schwarzenegger visited USC on April 16, 2007 and saluted the new Cardiovascular Thoracic Institute (CVTI), according to a press release issued by The Keck School Of Medicine at USC. Therefore, people . 2. Adam Pick is a heart valve patient and author of The Patient's Guide To Heart Valve Surgery. Could the changes in my LV be the result of the physiological, not the pathological change? My mom [and aunt] passed away [in their 60s from heart disease], and my dad had a heart attack when I was around 10 and he had a triple bypass, the actress told PEOPLE. In your case, though, the infection might well influence the healing process. Best to continue to work towards identifying cause(s) and getting any needed treatment. Ive not found any programs for evaluating repaired athletes unless something exist with a physiologist research lab. The issues of when, how, what sports are safe, etc. On March 30, 2018, we learned that Arnold Schwarzengger required a second heart surgery. "I had to make lifestyle and diet changes, she said. 1,3,4,15 It can lead to chronic heart failure and increase the risk of acute aor-tic syndromes and sudden cardiac death.15 Michelena et al16 studied 212 cases of asymp tomatic bicuspid . From the outside, these people look healthy, and some are, while others are not. The idea of somehow restricting the HR may be attractive as a means of curtailing strenuous activity. 2. My heart seems to heal, so that speaks well for my future.. Crossref Medline Google Scholar. Perhaps the best course of action might be to start off very conservative with exercise, as you are doing, with periodic assessment of the aortic valve and aorta with echo and CT. You might then gradually increase the activity and monitor for any bad signs with the periodic echos and CTs. Does lifting weights up to 100 pounds and being cleared for push-ups, pull-ups, all cardio, etc., sound reasonable? Consensus guidelines suggest that (athlete) patients with BAV and moderate enlargement of the ascending aorta should curtail their strenuous static (eg, weight-lifting) and endurance sporting activities because of the risk of aortic rupture or dissection. The HAART 200 is an innovative device that helps in the repair of BAV, allowing patients to avoid aortic valve replacement. So unfortunately it sounds like i am part of that grey area. Or usually lead a normal life? A 2nd opinion might help by bringing another set of eyes and ears to your problem. Athletes should have detailed discussion with their doctors about any prudent limitations to exercise after operation and settle on a mutually agreeable plan. Measurements of aortic diameter can be made with echocardiogram. Depending upon the size of the prosthetic valve, there is so e built-in obstruction to blood flow that is e aggregated during exercise. I have a few questions because I was instructed not to lift more than 10 lbs and that I could resume surfing in a year. Thus far shes had only minor bruising (shes 6ft and has a solid build). If reoperation is needed in your case, this would be something to discuss. Ive done so much research and there are lots of young people who have went on to play sports and lead normal lifes. In some cases, the aortic valve can be repaired and the enlarged aorta can be replaced with a Dacron tube. The fusion (sticking together) of the valve leaflets causes abnormal valve opening and closing. I will do whatever I can to make sure my mom is comfortable and has whatever she needs, she said. Bicuspid aortic valve (BAV) is the most common form of congenital aortic valve disease, in which the valve has only two leaflets instead of the usual three; it affects up to 2% of the population. Since Im not close to good medical care, are their specific things that I will start to notice if my heart valve is causing a problem? I have been factual with him and told him worst case scenario is he is done with both and have pushed him to see the positives of exploring other things to do. I have found out I have a BAV last year. For those same patients, we recommending avoiding strenuous dynamic exercise line swimming, running, soccer, tennis, cross-country skiing, etc. I have appointment with a cardiologist on Friday but in the meantime i would like to know weather in case of surgery a replacement of the valve is definitely necessary or my condition still allows some options for a surgery without replacement. I get sporatic tingling in my left hand and footand every so often in my left cheek bone. I hadnt heard about the technique previously. At this time, it is not known whether Arnold received the new valve using a surgical aortic . Your responses mean a lot to myself and no doubt others on this forum. How are you? Thank you so much! This content can also be viewed on the site it originates from. A 2019 report suggests that bicuspid aortic valve disease is the most common congenital heart valve problem, affecting between 0.5 and 2 percent of the general population. There are just so many causes of shortness of breath, lightheadedness, and chest pain.even besides the heart-related causes. When patients have moderate to severe aortic regurgitation, exercise can often be difficult. 2020 Update: Arnold Gets An Aortic Valve Re-Replacement! Normally, your aortic valve has three cusps that regulate blood flow from your heart to your aorta. I had surgery when I was 10 years old to replace my bav with a St.jude mechanical valve. Consult your doctor to see if there are any restrictions that would be specific to your case. I would like nothing more than to have this repaired so I can return to my lifestyle, I cant understand why I cant have it fixed as it is my choice to have surgery. We just saw them in January. California Governor and movie star of films including The Terminator and The Predator, Arnold Schwarzenegger marked the 10-year anniversary of his heart surgery at USCs Health Science Campus. Check out Anthony DiLemmes blog, Anthonys Heart Valve Replacement Saga. My primary question relates to sports. I have also been advised that running intervals at over 80% max heart rate would not be sensible. Im not a nurse or anyone who can help in any real way, she told PEOPLE, fighting back tears. Advice in this area must be individualized with your doctor(s). 1, 2 Much of the data relating to its complications derive from necropsy studies since reliable . Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. Youre right, though. Thank you,dr Creswell, My surgeon basically said, Lets get you back to living your life. Cardiologists always say take it easy. Very likely an operation will be needed at some point in the future. This valve repair option is one that might best be pursued at a center that specializes in this problem. Ordinarily, athlete patients with mild degrees of valve regurgitation can continue to participate in their sports. In March 2018 he underwent emergency surgery to have this replacement valve replaced. Theres a saying if you watch a group of kids running around, you would never know who had a heart defect unless they lifted their shirt. This list, which may shock you, includes Olympians, Athletes, Musicians and more, all with an invisible illness. Ive thought that the next visit to the pediatrician would be a good opportunity to discuss the issue. I then played football my last two years of high school as well as playing hockey and throwing shot put for the track team. New guidelines from 2015 are in accord with your doctors recommendations about vigorous exercise as well as periodic imaging to measure the aorta. The false lumen extending into the abdominal aorta was left since the point of origin in the ascending aorta was repaired. How severe are the problems? Perhaps meeting with a heart surgeon now, even if operation is not yet needed, might provide a forum for discussion about the options for surgery, the technical issues, and recovery.

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